Rare Blood Disease - WSMV News 4

Rare Blood Disease

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Violet Lee says "She is my very special to me because I've known her since kindergarten and we've been friends ever since."

Violet Lee and Haley Brooks have been best friends since they were five. The two girls now in the 6th grade at Lake Forest Middle School in Bradley County share a special bond.. One so strong that when Violet learned Haley needed a Bone Marrow Transplant she decided to had to help. So she organized a Blood and Bone Marrow drive, because none of Haley's family is compatible.

Violet Lee says "I'm doing this because she is my best friend and I want her to be better and I want her to be outside and play with me.

Haley Brooks says "Made me feel sad because I couldn't do anything."

Lisa Brooks says "I left the school crying Thursday because she was in tears. I made a deal with her she can always come home, but I want her to try."

Haley has a rare blood disease called Diamond Blackfan Anemia. Only 20 to 30 kids a year are diagnosed with this condition. Haley has to have a blood transfusion every other week. She can only make it through half a day of school, before she finds herself in pain, dealing with headaches and fatigue.

Lisa Brooks, Haley's Mom says "it's really hard watching her struggle there have been cases lately where they have even had trouble finding blood for her."

Lisa says right now, Haley is not making any red blood cells, she's completely dependent on the transfusion, and her white counts have gone up and down, and doctors say she could be looking at a complete bone marrow failure...

And if that happens, Haley has a much greater chance of being diagnosed with leukemia, and she is at a much higher risk of developing diabetes, high blood pressure, and brittle bone disease.

Haley is on new medication, but Lisa says the only 100 percent cure is a bone marrow transplant.

Lisa Brooks says "Watching her go through this, I would not want her to go through it again."

And neither does Haley's best friend who is hoping her blood and bone marrow drive and benefit will not only help find a successful donor, but also give Haley a normal life again.

Haley Brooks says "That makes me feel really good because I've known her for a long time, makes me feel like she's partly my sister."

A friendship and a bond that won't likely be broken anytime soon. As these best friends deal with sickness and hopefully much better health in the future.


Place: Wesley Memorial United Methodist Church

3405 Peerless Road, Cleveland, TN


1:00 - 6:00 PM Blood and Bone Marrow Drive


7:00 - 7:30 PM Josh Neyman and Restoration (Singing)

7:30 - 7:45 PM Destiny Crittenden (Singing)

7:45 - 8:00 PM Mrs. Snider (Singing, one of Haley's School Teachers)

7:45 - 8:00 PM Haley Brooks, (Singing) with Violet Lee, & others Signing

8:00 - 8:30 PM Connie Wright (Comedienne) and Jefferson Awards Nominee

8:30 - 9:00 PM Mallory Ledford (Singing)


Dessert & Drinks


There will also be 2 Actors attending the Event.





Robert Coles

Robby Coles has been acting for over 20 years, and has seen success in the Nashville market, as well as nation-wide. He recently appeared in the films Blue Like Jazz: The Movie and 23rd Psalm: Redemption, both of which will receive a national release in 2012. Coles is also an accomplished screen writer. He has been featured in projects for Campbell's Soup, Emdeon, Doritos and The 700 Club. He has been seen on the stage in productions across Nashville including Moon Over Buffalo, Every Christmas Story Ever Told, Seussical, Gypsy and The King and I. He is an award winning actor, having received the award for Best Actor in a Dramatic Production and studied Theatre at Oklahoma Christian University and Acting at the University of Central Oklahoma and Oklahoma City University. Robby opened the Actor's Advantage Agency in January of 2011 with business partner Buffi Holland, and also works with several local film production companies and non-profit organizations.




Buffi Holland

Buffi Holland is a graduate of James Madison University with a Bachelor of Science degree in Mass Communication and Theatre Arts. Mrs. Holland has been active in the performing arts for over 20 years. Her experience includes stage performance, feature films, commercials and instructing. Buffi can be seen several local and regional commercials airing in the Nashville market, including the TN Lottery and O'Charley's. She was also a supporting cast member in The Hannah Montana Movie and a featured cast member in Blue Like Jazz: The Movie. Holland also recently appeared in the Taylor Swift music video, "Ours". Buffi lives in Nashville, TN with her husband Joe, and two daughters, Makayla and Kelsey.





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